The Goodness Thread
- Thread starter Dingleberry
- Start date
HSanders
EEEGGGGGGGGGGGGGGSSSS!!!!!!
Maybe some of you will care about an adult with cancer....
View: https://x.com/_MLFootball/status/1901103889207709794
View: https://x.com/_MLFootball/status/1901103889207709794
**Update on Savannah**
Savannah’s Neuro team rounded this morning and said that her EEG brain waves (the machine they use to monitor her seizure activity) are calming down and looking better.
They will be increasing all of her medications to try to get her seizures/seizure like activity to completely cease in her brain. This means that she will be on her sedatives for a few days longer so she will not be waking up for a while.
If increasing her current medications does not eliminate the seizure activity, they will be trying a medication called pentobarbital. This medicine is very strong and should completely calm her brain. She would be on it for 24 hours.
The doctors likened the pentobarbital to shutting off a computer that isn’t functioning properly and once you restart it, the problem is most often resolved. Similarly, they find that this is the case with many children resolving their seizures all together and giving them a fresh start.
Since the pentobarbital is so strong, they do want to use it as a last resort because it can possibly affect vital organs in the body, so there are risks involved.
We are encouraged today and optimistic toward her future. It’s good to know there are options and different avenues we can explore for getting our girl better.
*Update on Savannah**
No seizures for over 48 hours!! She is being weaned off of her sedatives every 6 hours by .5mg. She will be awake sometime next week Lord willing.
Savannah has shown some signs of becoming more alert. She was trying to cough and gag earlier on her ventilator when we were moving her around and changing her diaper. This seems like something negative, but this is a sign of her starting to become more aware of her surroundings so I am grateful.
She’s flared her nostrils once, and she did shed a tear when they were changing some tape on her face (that strong adhesive tape hurts when you pull it off.)
It’s small signs that we are seeing from her, but to this mama that’s not seen her baby awake for almost a week, it’s huge.
No seizures for over 48 hours!! She is being weaned off of her sedatives every 6 hours by .5mg. She will be awake sometime next week Lord willing.
Savannah has shown some signs of becoming more alert. She was trying to cough and gag earlier on her ventilator when we were moving her around and changing her diaper. This seems like something negative, but this is a sign of her starting to become more aware of her surroundings so I am grateful.
She’s flared her nostrils once, and she did shed a tear when they were changing some tape on her face (that strong adhesive tape hurts when you pull it off.)
It’s small signs that we are seeing from her, but to this mama that’s not seen her baby awake for almost a week, it’s huge.
My stepdad was given a 5% chance to make it another year. He had inoperable cancer, tumors growing throughout his body, all his organs, and his brain. that was just over 5 years ago.
